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Evaluating the feasibility of delivering a pain management programme for adults living with sickle cell disease

Mcloughlin, R; Love, J; Smith, JG; Scott, W; Noblet, T (2024) Evaluating the feasibility of delivering a pain management programme for adults living with sickle cell disease. BRITISH JOURNAL OF PAIN, 18 (3). pp. 257-273. ISSN 2049-4637 https://doi.org/10.1177/20494637231202744
SGUL Authors: Smith, Jared Grant

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Abstract

Background Pain is the prominent feature of sickle cell disease (SCD) and negatively affects quality of life. Delivery of pain management programmes (PMPs) has been suggested in clinical guidelines for pain management in SCD; however, further evidence of the feasibility and effectiveness of PMPs in this population is needed. This study explored the feasibility of delivering a sickle cell pain management programme (SCPMP) for adults within a haemoglobinopathies service. Methods A single arm, repeated-measures observational design was used to determine feasibility of delivering the SCPMP at one study site. Primary feasibility outcomes were recruitment, completion of treatment and outcome measures, satisfaction, credibility and acceptability to participants. Secondary feasibility outcomes were treatment outcomes and processes, frequency of vaso-occlusive crisis (VOC) and healthcare utilisation. Results Four of five feasibility criteria were met. Annual recruitment of eight participants to a SCPMP was not achieved. Twenty-nine people began a SCPMP during the study period. Twenty-five (86.2%) participants attended ≥5/8 sessions and 21(84%) programme completers provided all end of programme questionnaires. Mean scores of >7 on ten-point scales were seen across satisfaction and credibility questions. At least moderate (Hedges g >0.5) effect sizes were seen in pre-post SCPMP measures of pain interference, anxiety, depression, self-efficacy, pain-related worry and acceptance. A small (Hedges g 0.4) effect size was seen in HRQoL. Following SCPMP attendance, mean frequency of self-reported VOC and hospital admissions reduced. Conclusions This study suggests that, given an adequate source of referrals, a SCPMP is feasible to deliver and appears acceptable and credible to participants. Exploration of influences on recruitment, such as barriers to group interventions, would be illuminating, prior to investigating feasibility of an adequately powered randomised-controlled trial.

Item Type: Article
Additional Information: Mcloughlin, R; Love, J; Smith, JG; Scott, W; Noblet, T, Evaluating the feasibility of delivering a pain management programme for adults living with sickle cell disease, British Journal of Pain (Volume 18, Issue 3) pp. 257-273. Copyright © 2023 The Author(s). DOI: 10.1177/20494637231202744.
Keywords: sickle cell disease, sickle cell, persistent pain, chronic pain, pain management programme
SGUL Research Institute / Research Centre: Academic Structure > Population Health Research Institute (INPH)
Journal or Publication Title: BRITISH JOURNAL OF PAIN
ISSN: 2049-4637
Dates:
DateEvent
June 2024Published
21 September 2023Published Online
Publisher License: Publisher's own licence
Projects:
Project IDFunderFunder ID
NIHR 301902National Institute for Health and Care Researchhttp://dx.doi.org/10.13039/501100000272
Web of Science ID: WOS:001070280200001
URI: https://openaccess.sgul.ac.uk/id/eprint/116284
Publisher's version: https://doi.org/10.1177/20494637231202744

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