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Degree of autonomy in making independent choices by frail older people with intellectual disabilities in a care home: A descriptive ethnographic study.

Noorlandt, HW; Korfage, IJ; van der Sar, LJ; Felet, FMAJ; Tuffrey-Wijne, I; van der Heide, A; Echteld, MA (2023) Degree of autonomy in making independent choices by frail older people with intellectual disabilities in a care home: A descriptive ethnographic study. J Appl Res Intellect Disabil, 36 (4). pp. 812-821. ISSN 1468-3148 https://doi.org/10.1111/jar.13097
SGUL Authors: Tuffrey-Wijne, Irene Mathilda Maria

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Abstract

BACKGROUND: We aimed to gain more insight into autonomy of older people with intellectual disabilities in a residential care facility in making choices. METHODS: We performed a descriptive ethnographic study in a residential facility in the Netherlands for 22 persons, aged 54-89 years, with mild to moderate intellectual disabilities (IQ <70) and low social-emotional development levels. We combined participant observations and qualitative interviews. RESULTS: Based on the observations, the main themes for the interviews were established. Residents indicated to be free to make independent choices, and experienced less autonomy with regard to health issues and finances. Support staff stated that residents' level of autonomy depends on residents' characteristics, needs, preferences, the attitude of support staff and the rules of the care institution. CONCLUSION: Residents had a clear view on their autonomy in making independent choices. Support staff is mindful of preserving residents' autonomy, which in practice is limited.

Item Type: Article
Additional Information: © 2023 Erasmus MC. Journal of Applied Research in Intellectual Disabilities published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
Keywords: autonomy, choices, decision-making, frail elder people, people with intellectual disabilities, autonomy, choices, decision-making, frail elder people, people with intellectual disabilities, 1607 Social Work, 1701 Psychology, 1702 Cognitive Sciences, Rehabilitation
SGUL Research Institute / Research Centre: Academic Structure > Institute of Medical & Biomedical Education (IMBE)
Journal or Publication Title: J Appl Res Intellect Disabil
ISSN: 1468-3148
Language: eng
Dates:
DateEvent
4 June 2023Published
12 April 2023Published Online
6 March 2023Accepted
Publisher License: Creative Commons: Attribution 4.0
Projects:
Project IDFunderFunder ID
844001503Netherlands Organisation for Health Research and Developmenthttp://dx.doi.org/10.13039/501100001826
PubMed ID: 37051659
Web of Science ID: WOS:000969091300001
Go to PubMed abstract
URI: https://openaccess.sgul.ac.uk/id/eprint/115418
Publisher's version: https://doi.org/10.1111/jar.13097

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