Newlands, F;
Fox-Smith, L;
Balakrishnan, S;
Lord, G;
Chalder, T;
Dalrymple, E;
Ford, T;
Harnden, A;
Heyman, I;
Ladhani, SN;
et al.
Newlands, F; Fox-Smith, L; Balakrishnan, S; Lord, G; Chalder, T; Dalrymple, E; Ford, T; Harnden, A; Heyman, I; Ladhani, SN; Pereira, SMP; Segal, TY; Stephenson, T; Whittaker, E; Shafran, R
(2024)
Using a novel methodology to map Post-COVID services for children and young people in England: a web-based systematic search.
BMC HEALTH SERVICES RESEARCH, 24 (1).
p. 863.
ISSN 1472-6963
https://doi.org/10.1186/s12913-024-11283-7
SGUL Authors: Ladhani, Shamez Nizarali
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Abstract
Background Post-COVID Condition (PCC), also known as ‘Long COVID,’ refers to persistent symptoms following a coronavirus 2 (SARS-CoV-2) infection. The prevalence of PCC in children and adolescents varies, impacting multiple body systems and affecting daily functioning. Specialised paediatric hubs were established in England to address the needs of young individuals with PCC. Additional local services also emerged, yet patients report challenges accessing services. To better understand the landscape of paediatric PCC services, we used a novel methodology using a web-based systematic search. Methods A web-based search was conducted in July 2023 using DEVONagent Pro. Search terms related to Long COVID and Pediatrics in England. Eligible sources providing information on PCC services for children and young people were included. A supplementary manual search and NHS England Post-COVID Network were also consulted. Data extraction included service location, characteristics, and referral pathways. Population estimates were derived from UK Census data. Results Among 342 identified records, 27 services met eligibility criteria, distributed unevenly across regions. Specialised hubs covered 13 locations, while additional services were concentrated in the South of England and London. Services varied in team composition, age range treated, and support offered. A lack of standardised approaches for paediatric PCC was evident. Discussion We used a novel methodology for systematically mapping online resources, providing valuable insights into service accessibility and aiding the identification of potential gaps. We observed geographical disparities in access to paediatric PCC services and the absence of standardised approaches in managing symptoms. Given the challenges faced by young individuals seeking support for their PCC the need for equitable and standardised care became apparent. The study contributes to closing the research-practice gap and calls for further research to identify effective treatments for paediatric PCC, acknowledging the diversity of reported symptoms and the importance of tailored approaches.
Item Type: | Article | ||||||||||||||||||||||||
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Additional Information: | © The Author(s) 2024. Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data. | ||||||||||||||||||||||||
Keywords: | Post-COVID services, Long COVID, Children and young people, Paediatric, SARS-CoV-2, 0807 Library and Information Studies, 1110 Nursing, 1117 Public Health and Health Services, Health Policy & Services | ||||||||||||||||||||||||
SGUL Research Institute / Research Centre: | Academic Structure > Infection and Immunity Research Institute (INII) | ||||||||||||||||||||||||
Journal or Publication Title: | BMC HEALTH SERVICES RESEARCH | ||||||||||||||||||||||||
ISSN: | 1472-6963 | ||||||||||||||||||||||||
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Publisher License: | Creative Commons: Attribution 4.0 | ||||||||||||||||||||||||
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Web of Science ID: | WOS:001280718300001 | ||||||||||||||||||||||||
URI: | https://openaccess.sgul.ac.uk/id/eprint/116775 | ||||||||||||||||||||||||
Publisher's version: | https://doi.org/10.1186/s12913-024-11283-7 |
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