Newlands, F;
Lewis, C;
d'Oelsnitz, A;
Pinto Pereira, SM;
Stephenson, T;
Chalder, T;
Coughtrey, A;
Dalrymple, E;
Heyman, I;
Harnden, A;
et al.
Newlands, F; Lewis, C; d'Oelsnitz, A; Pinto Pereira, SM; Stephenson, T; Chalder, T; Coughtrey, A; Dalrymple, E; Heyman, I; Harnden, A; Ford, T; Ladhani, SN; Powell, C; McOwat, K; Bhopal, R; Dudley, J; Kolasinska, P; Muhid, MZ; Nugawela, M; Rojas, NK; Shittu, A; Simmons, R; Shafran, R
(2024)
"People don't have the answers": A qualitative exploration of the experiences of young people with Long COVID.
Clin Child Psychol Psychiatry, 29 (3).
pp. 783-798.
ISSN 1461-7021
https://doi.org/10.1177/13591045241252463
SGUL Authors: Ladhani, Shamez Nizarali
Abstract
Young people living with Long COVID are learning to navigate life with a constellation of poorly understood symptoms. Most qualitative studies on experiences living with Long COVID focus on adult populations. This study aimed to understand the experiences of young people living with Long COVID. Qualitative, semi-structured interviews were conducted (n = 16); 11 young people (aged 13-19) and five parents were recruited from the Children and Young People with Long COVID (CLoCk) study (n = 11) or its patient and public involvement and engagement (PPIE) group (n = 5). Thematic analysis generated four themes: (i) Unravelling Long COVID: Exploring Symptom Journeys and Diagnostic Dilemmas; (ii) Identity Disruption and Adjustment; (iii) Long COVID's Ripple Effect: the impact on Mental Health, Connections, and Education; and (iv) Navigating Long COVID: barriers to support and accessing services. Treatment options were perceived as not widely available or ineffective, emphasising the need for viable and accessible interventions for young people living with Long COVID.
| Item Type: |
Article
|
| Additional Information: |
© The Author(s) 2024.
Creative Commons License (CC BY 4.0)
This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage). |
| Keywords: |
Children and young people, Long COVID, experience, post-COVID condition, qualitative, Humans, COVID-19, Adolescent, Female, Male, Qualitative Research, Young Adult, Post-Acute COVID-19 Syndrome, Adaptation, Psychological, Adult, Health Services Accessibility, Humans, Adaptation, Psychological, Qualitative Research, Adolescent, Adult, Health Services Accessibility, Female, Male, Young Adult, COVID-19, Post-Acute COVID-19 Syndrome, Children and young people, Long COVID, qualitative, experience, post-COVID condition, Developmental & Child Psychology |
| SGUL Research Institute / Research Centre: |
Academic Structure > Infection and Immunity Research Institute (INII) |
| Journal or Publication Title: |
Clin Child Psychol Psychiatry |
| ISSN: |
1461-7021 |
| Language: |
eng |
| Dates: |
| Date | Event |
|---|
| July 2024 | Published | | 8 May 0224 | Published Online |
|
| Publisher License: |
Creative Commons: Attribution 4.0 |
| Projects: |
|
| PubMed ID: |
38718276 |
| Web of Science ID: |
WOS:001220208000001 |
 |
Go to PubMed abstract |
| URI: |
https://openaccess.sgul.ac.uk/id/eprint/116680 |
| Publisher's version: |
https://doi.org/10.1177/13591045241252463 |
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