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Building Bridges between People with Stroke, Families, and Health Professionals: Development of a Blended Care Program for Self-Management

Mendes Pereira, C; Matos, M; Carvalho, D; Macedo, P; Calheiros, JM; Alves, J; Paulino Ferreira, L; Dias, TL; Neves Madeira, R; Jones, F (2024) Building Bridges between People with Stroke, Families, and Health Professionals: Development of a Blended Care Program for Self-Management. Journal of Clinical Medicine, 13 (1). p. 300. ISSN 2077-0383 https://doi.org/10.3390/jcm13010300
SGUL Authors: Jones, Fiona

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Abstract

Evidence-informed interventions for stroke self-management support can influence functional capability and social participation. People with stroke should be offered self-management support after hospital discharge. However, in Portugal, there are no known programs of this nature. This study aimed to develop a person-centered and tailored blended care program for post-stroke self-management, taking into account the existing evidence-informed interventions and the perspectives of Portuguese people with stroke, caregivers, and health professionals. An exploratory sequential mixed methods approach was used, including qualitative methods during stakeholder consultation (stage 1) and co-production (stage 2) and quantitative assessment during prototyping (stage 3). After ethical approval, recruitment occurred in three health units. Results from a literature search led to the adaptation of the Bridges Stroke Self-Management Program. In stage one, 47 participants were interviewed, with two themes emerging: (i) Personalized support and (ii) Building Bridges through small steps. In stage two, the ComVida program was developed, combining in-person and digital approaches, supported by a workbook and a mobile app. In stage three, 56 participants evaluated prototypes, demonstrating a strong level of quality. Understandability and actionability of the developed tools obtained high scores (91–100%). The app also showed good usability (A-grade) and high levels of recommendation (5 stars).

Item Type: Article
Additional Information: © 2024 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
Keywords: 1103 Clinical Sciences
SGUL Research Institute / Research Centre: Academic Structure > Population Health Research Institute (INPH)
Journal or Publication Title: Journal of Clinical Medicine
ISSN: 2077-0383
Language: en
Dates:
DateEvent
4 January 2024Published
2 January 2024Accepted
Publisher License: Creative Commons: Attribution 4.0
URI: https://openaccess.sgul.ac.uk/id/eprint/115985
Publisher's version: https://doi.org/10.3390/jcm13010300

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