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Conceptualisation of the 'good' self-manager: A qualitative investigation of stakeholder views on the self-management of long-term health conditions.

Ellis, J; Boger, E; Latter, S; Kennedy, A; Jones, F; Foster, C; Demain, S (2017) Conceptualisation of the 'good' self-manager: A qualitative investigation of stakeholder views on the self-management of long-term health conditions. Soc Sci Med, 176. pp. 25-33. ISSN 1873-5347 https://doi.org/10.1016/j.socscimed.2017.01.018
SGUL Authors: Jones, Fiona

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Abstract

Healthcare policy in developed countries has, in recent years, promoted self-management among people with long-term conditions. Such policies are underpinned by neoliberal philosophy, as seen in the promotion of greater individual responsibility for health through increased support for self-management. Yet still little is known about how self-management is understood by commissioners of healthcare services, healthcare professionals, people with long-term conditions and family care-givers. The evidence presented here is drawn from a two-year study, which investigated how self-management is conceptualised by these stakeholder groups. Conducted in the UK between 2013 and 2015, this study focused on three exemplar long-term conditions, stroke, diabetes and colorectal cancer, to explore the issue. Semi-structured interviews and focus groups were carried out with 174 participants (97 patients, 35 family care-givers, 20 healthcare professionals and 22 commissioners). The data is used to demonstrate how self-management is framed in terms of what it means to be a 'good' self-manager. The 'good' self-manager is an individual who is remoralised; thus taking responsibility for their health; is knowledgeable and uses this to manage risks; and, is 'active' in using information to make informed decisions regarding health and social wellbeing. This paper examines the conceptualisation of the 'good' self-manager. It demonstrates how the remoralised, knowledgeable and active elements are inextricably linked, that is, how action is knowledge applied and how morality underlies all action of the 'good' self-manager. Through unpicking the 'good' self-manager the problems of neoliberalism are also revealed and addressed here.

Item Type: Article
Additional Information: © 2017. This manuscript version is made available under the CC-BY-NC-ND 4.0 license https://creativecommons.org/licenses/by-nc-nd/4.0/
Keywords: Long-term conditions, Neoliberalism, Person-centred care, Self-management, United Kingdom, Adolescent, Adult, Caregivers, Colorectal Neoplasms, Diabetes Mellitus, Disabled Persons, Disease Management, Female, Health Personnel, Health Policy, Humans, Male, Middle Aged, Qualitative Research, Self Efficacy, Self-Management, Stroke, United Kingdom, Humans, Colorectal Neoplasms, Diabetes Mellitus, Self Efficacy, Qualitative Research, Health Policy, Adolescent, Adult, Middle Aged, Caregivers, Disabled Persons, Health Personnel, Disease Management, Female, Male, Stroke, United Kingdom, Self-Management, United Kingdom, Self-management, Person-centred care, Long-term conditions, Neoliberalism, 11 Medical and Health Sciences, 14 Economics, 16 Studies in Human Society, Public Health
SGUL Research Institute / Research Centre: Academic Structure > Population Health Research Institute (INPH)
Journal or Publication Title: Soc Sci Med
ISSN: 1873-5347
Language: eng
Dates:
DateEvent
23 January 2017Published
17 January 2017Published Online
13 January 2017Accepted
Publisher License: Creative Commons: Attribution-Noncommercial-No Derivative Works 4.0
Projects:
Project IDFunderFunder ID
PDF-2011-04-016Department of HealthUNSPECIFIED
7208The Health FoundationUNSPECIFIED
PubMed ID: 28126586
Web of Science ID: WOS:000395839900004
Go to PubMed abstract
URI: https://openaccess.sgul.ac.uk/id/eprint/115300
Publisher's version: https://doi.org/10.1016/j.socscimed.2017.01.018

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