Mäkelä, P; Jones, F; de Sousa de Abreu, MI; Hollinshead, L; Ling, J
(2019)
Supporting self-management after traumatic brain injury: Codesign and evaluation of a new intervention across a trauma pathway.
Health Expect, 22 (4).
pp. 632-642.
ISSN 1369-7625
https://doi.org/10.1111/hex.12898
SGUL Authors: Jones, Fiona
Abstract
BACKGROUND: Supported self-management (SSM) is a recognized approach for people with long-term conditions but, despite the prevalence of unmet needs, little is known about its role for people with traumatic brain injury (TBI). OBJECTIVES: To codesign an SSM intervention with people with TBI and evaluate feasibility of implementation through multidisciplinary staff across a trauma pathway. SETTING AND PARTICIPANTS: People who had previously been admitted to a Major Trauma Centre following TBI and family members participated in a series of codesign activities. Staff attended SSM workshops and used the intervention with patients in acute and rehabilitation settings. METHODS: We used Normalization Process Theory constructs to guide and interpret implementation. Knowledge, beliefs and confidence of staff in SSM were assessed through pre- and post-training questionnaires, and staff, patients' and families' experiences were explored through semi-structured interviews. Qualitative data were analysed thematically, and clinical measures were mapped against a matched sample. RESULTS: Codesigned resources were created and used within an SSM approach for which 110 staff participated in training. Evaluation demonstrated significant differences in staff SSM confidence and skills, following training. Qualitative evaluation revealed adoption by staff, and patients' and families' experiences of using the resources. Challenges included reaching staff across complex pathways to achieve collective implementation. CONCLUSION: This is the first project to demonstrate feasibility of SSM for people after TBI starting in an acute trauma setting. Through an open approach to codesign with a marginalized group, the SSM resources were valued by them and held meaning and relevance for staff.
Item Type: |
Article
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Additional Information: |
© 2019 The Authors. Health Expectations published by John Wiley & Sons Ltd
This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
Keywords: |
codesign, hospital care, patient-centred care, quality improvement, self-management support, teamwork, traumatic brain injuries, Brain Injuries, Traumatic, Family, Female, Health Knowledge, Attitudes, Practice, Humans, Male, Patient Care Team, Professional Role, Self-Management, Social Support, Humans, Health Knowledge, Attitudes, Practice, Family, Professional Role, Social Support, Patient Care Team, Female, Male, Brain Injuries, Traumatic, Self-Management, codesign, hospital care, patient-centred care, quality improvement, self-management support, teamwork, traumatic brain injuries, 1110 Nursing, 1117 Public Health and Health Services, 1701 Psychology, Public Health |
SGUL Research Institute / Research Centre: |
Academic Structure > Population Health Research Institute (INPH) |
Journal or Publication Title: |
Health Expect |
ISSN: |
1369-7625 |
Language: |
eng |
Dates: |
Date | Event |
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11 September 2019 | Published | 29 April 2019 | Published Online | 4 April 2019 | Accepted |
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Publisher License: |
Creative Commons: Attribution 4.0 |
Projects: |
Project ID | Funder | Funder ID |
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UNSPECIFIED | The Health Foundation | UNSPECIFIED |
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PubMed ID: |
31033115 |
Web of Science ID: |
WOS:000485311700004 |
![](http://static.pubmed.gov/portal/portal3rc.fcgi/2745237/img/27842) |
Go to PubMed abstract |
URI: |
https://openaccess.sgul.ac.uk/id/eprint/115289 |
Publisher's version: |
https://doi.org/10.1111/hex.12898 |
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