Hermaszewska, S; Sin, J
(2021)
End-user perspectives on the development of an online intervention for parents of children on the autism spectrum.
Autism, 25 (5).
pp. 1234-1245.
ISSN 1461-7005
https://doi.org/10.1177/1362361320984895
SGUL Authors: Sin, Pui Han Jacqueline
Abstract
LAY ABSTRACT: Parent caregivers play an essential role in the lives of individuals on the autism spectrum. The demands of caregiving can have negative effects on the mental and physical wellbeing of parents. Different types of formal support have been developed to help parents to cope with caregiving; however, many parents struggle to access services due to limited availability and busy schedules. The Internet could offer parents more accessible and flexible support. We asked 17 parents what content they would like to include in an online resource. Parents told us about their experiences trying to access and use existing formal support and websites. They overwhelmingly supported the development of an online resource informed by their suggestions. Parents emphasised the need for easier access to information through educational components and direct access to healthcare professionals online. Parents also wanted help with finding existing services and reliable, locally relevant information. Parents stressed the need for a safe environment to meet and chat with other parents online. This research forms the first stage in the development process of an online health resource for parents.
Item Type: |
Article
|
Additional Information: |
© The Author(s) 2021
https://creativecommons.org/licenses/by/4.0/This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage) |
Keywords: |
autism, eHealth, family caregiver, online intervention, parents, autism, eHealth, family caregiver, online intervention, parents, 1303 Specialist Studies in Education, 1701 Psychology, 1702 Cognitive Sciences, Developmental & Child Psychology |
SGUL Research Institute / Research Centre: |
Academic Structure > Population Health Research Institute (INPH) |
Journal or Publication Title: |
Autism |
ISSN: |
1461-7005 |
Language: |
eng |
Dates: |
Date | Event |
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1 July 2021 | Published | 11 January 2021 | Published Online |
|
Publisher License: |
Creative Commons: Attribution 4.0 |
PubMed ID: |
33423522 |
Web of Science ID: |
WOS:000626193800001 |
![](http://static.pubmed.gov/portal/portal3rc.fcgi/2745237/img/27842) |
Go to PubMed abstract |
URI: |
https://openaccess.sgul.ac.uk/id/eprint/113238 |
Publisher's version: |
https://doi.org/10.1177/1362361320984895 |
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