Cope, SR; Smith, JG; Edwards, MJ; Holt, K; Agrawal, N
(2020)
Enhancing the communication of functional neurological disorder diagnosis: a multidisciplinary education session.
Eur J Neurol, 28 (1).
pp. 40-47.
ISSN 1468-1331
https://doi.org/10.1111/ene.14525
SGUL Authors: Smith, Jared Grant
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Abstract
BACKGROUND: Functional neurological disorder (FND) is a common diagnosis within Neurology. Effective communication of the diagnosis is known to be an important part of treatment and can result in reduction or cessation of symptoms, as well as decreased healthcare utilisation. A single group education session, facilitated by professionals commonly involved in the care of patients with FND, was developed to further enhance patients' and relatives' understanding and acceptance of diagnosis. METHODS: Patients and relatives attending a single education session were asked to complete self-report ratings of understanding of diagnosis, acceptance of diagnosis, belief in treatability, and hopefulness regarding recovery, at the beginning and end of the session. Satisfaction data was also collected. RESULTS: Data was obtained from 193 patients and 153 relatives. Patients had experienced a median duration of symptoms of 4 years, and more than 80% of patients reported more than one functional neurological symptom. There were significant increases in terms of understanding, acceptance, belief in treatability and hopefulness for patients and relatives. Effect sizes ranged from large for improved understanding of FND to small-to-medium for increased agreement with FND diagnosis. High levels of satisfaction were also reported. CONCLUSIONS: A multi-disciplinary single group education session is an effective and acceptable method of increasing understanding and acceptance of an FND diagnosis, even for patients with a long-duration of symptoms and high symptom burden. It could help improve readiness for further treatment.
Item Type: |
Article
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Additional Information: |
This is the peer reviewed version of the following article: Cope, S.R., Smith, J.G., Edwards, M.J., Holt, K. and Agrawal, N. (2021), Enhancing the communication of functional neurological disorder diagnosis: a multidisciplinary education session. Eur. J. Neurol., 28: 40-47, which has been published in final form at https://doi.org/10.1111/ene.14525. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions. |
Keywords: |
communication, conversion disorder, education, functional neurological disorder, psychoeducation, psychogenic, Neurology & Neurosurgery, 1103 Clinical Sciences, 1109 Neurosciences |
SGUL Research Institute / Research Centre: |
Academic Structure > Population Health Research Institute (INPH) |
Journal or Publication Title: |
Eur J Neurol |
ISSN: |
1468-1331 |
Language: |
eng |
Dates: |
Date | Event |
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9 October 2020 | Published | 9 October 2020 | Published Online | 31 August 2020 | Accepted |
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Publisher License: |
Publisher's own licence |
PubMed ID: |
32918317 |
![](http://static.pubmed.gov/portal/portal3rc.fcgi/2745237/img/27842) |
Go to PubMed abstract |
URI: |
https://openaccess.sgul.ac.uk/id/eprint/112409 |
Publisher's version: |
https://doi.org/10.1111/ene.14525 |
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