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Evaluation of a community-based performance arts programme for people who have experienced stroke in the UK: protocol for the SHAPER-Stroke Odysseys study.

Estevao, C; Baldellou Lopez, M; Davis, RE; Jarret, L; Soukup, T; Bakolis, I; Healey, A; Harrington, J; Woods, A; Crane, N; et al. Estevao, C; Baldellou Lopez, M; Davis, RE; Jarret, L; Soukup, T; Bakolis, I; Healey, A; Harrington, J; Woods, A; Crane, N; Jones, F; Pariante, C; Fancourt, D; Sevdalis, N (2022) Evaluation of a community-based performance arts programme for people who have experienced stroke in the UK: protocol for the SHAPER-Stroke Odysseys study. BMJ Open, 12 (3). e057805. ISSN 2044-6055 https://doi.org/10.1136/bmjopen-2021-057805
SGUL Authors: Jones, Fiona

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Abstract

INTRODUCTION: Stroke survivors, once in the community, face challenges with their long-term rehabilitation care and present higher levels of loneliness, depression and anxiety than the rest of the population. A community-based performance arts programme, Stroke Odysseys (SO), has been devised to tackle the challenges of living with stroke in the UK. In this study, we aim to evaluate the implementation, impact and experiences of SO for stroke survivors. METHODS AND ANALYSIS: Scaling-up Health Arts Programmes: Implementation and Effectiveness Research (SHAPER)-SO aims to scale-up SO to 75 participants and 47 stakeholders, while simultaneously evaluating the effectiveness and implementation of the programme. The main research aim is to evaluate the implementation, effectiveness, impact and experiences of a community-based performance arts programme (SO for stroke survivors). This mixed-methods study will evaluate the experience and impact of SO on those participating using mixed methods (interviews, observations and surveys) before and after each stage and carry out non-participant observations during a percentage of the workshops, training and tour. Data will be analysed using quantitative and qualitative approaches. This is a study within the SHAPER programme. ETHICS AND DISSEMINATION: Ethical approval has been granted by the King's College London PNM Research Ethics Panel, REC reference: LRS/DP-20/21-21549. Written informed consent will be sought for participants and stakeholders. The results of the study will be reported and disseminated at international conferences and in peer-reviewed scientific journals. TRIAL REGISTRATION NUMBER: NCT04864470.

Item Type: Article
Additional Information: © Author(s) (or their employer(s)) 2022. Re-use permitted under CC BY. Published by BMJ. https://creativecommons.org/licenses/by/4.0/ This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made. See: https://creativecommons.org/licenses/by/4.0/.
Keywords: qualitative research, statistics & research methods, stroke, Humans, Quality of Life, Stroke, Stroke Rehabilitation, Surveys and Questionnaires, United Kingdom, Humans, Quality of Life, Stroke, Surveys and Questionnaires, United Kingdom, Stroke Rehabilitation, 1103 Clinical Sciences, 1117 Public Health and Health Services, 1199 Other Medical and Health Sciences
SGUL Research Institute / Research Centre: Academic Structure > Population Health Research Institute (INPH)
Journal or Publication Title: BMJ Open
ISSN: 2044-6055
Language: eng
Dates:
DateEvent
11 March 2022Published
3 February 2022Accepted
Publisher License: Creative Commons: Attribution 4.0
Projects:
Project IDFunderFunder ID
UNSPECIFIEDNational Institute for Health Researchhttp://dx.doi.org/10.13039/501100000272
219425/Z/19/ZWellcome Trusthttp://dx.doi.org/10.13039/100004440
PubMed ID: 35277410
Go to PubMed abstract
URI: https://openaccess.sgul.ac.uk/id/eprint/115243
Publisher's version: https://doi.org/10.1136/bmjopen-2021-057805

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