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Post-Traumatic Growth in Parents following Their Child's Death in a Pediatric Intensive Care Unit.

Suttle, M; Hall, MW; Pollack, MM; Berg, RA; McQuillen, PS; Mourani, PM; Sapru, A; Carcillo, JA; Startup, E; Holubkov, R; et al. Suttle, M; Hall, MW; Pollack, MM; Berg, RA; McQuillen, PS; Mourani, PM; Sapru, A; Carcillo, JA; Startup, E; Holubkov, R; Notterman, DA; Colville, G; Meert, KL; Eunice Kennedy Shriver National Institute of Child Health and Hu (2022) Post-Traumatic Growth in Parents following Their Child's Death in a Pediatric Intensive Care Unit. J Palliat Med, 25 (2). pp. 265-273. ISSN 1557-7740 https://doi.org/10.1089/jpm.2021.0290
SGUL Authors: Colville, Gillian

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Abstract

Background: Although bereaved parents suffer greatly, some may experience positive change referred to as post-traumatic growth. Objective: Explore the extent to which parents perceive post-traumatic growth after their child's death in a pediatric intensive care unit (PICU), and associated factors. Design: Longitudinal parent survey conducted 6 and 13 months after a child's death. Surveys included the Post-traumatic Growth Inventory-Short Form (PTGI-SF), a 10-item measure with range of 0-50 where higher scores indicate more post-traumatic growth. Surveys also included the Inventory of Complicated Grief (ICG), the Patient Health Questionnaire-8 (PHQ-8) for depression, the Short Post-Traumatic Stress Disorder Rating Interview (SPRINT), a single item on perceived overall health, and sociodemographics. Setting/Subjects: One hundred fifty-seven parents of 104 children who died in 1 of 8 PICUs affiliated with the U.S. Collaborative Pediatric Critical Care Research Network. Results: Of participating parents, 62.4% were female, 71.6% White, 82.7% married, and 89.2% had at least a high school education. Mean PTGI-SF scores were 27.5 ± 12.52 (range 5-50) at 6 months and 28.6 ± 11.52 (range 2-49) at 13 months (p = 0.181). On multivariate modeling, higher education (compared with those not completing high school) and higher 6-month ICG scores (reflecting more complicated grief symptoms) were associated with lower 13-month PTGI-SF scores (p = 0.005 and 0.033, respectively). Conclusion: Parents bereaved by their child's PICU death perceive a moderate degree of post-traumatic growth in the first 13 months after the death however variability is wide. Education level and complicated grief symptoms may influence parents' perception of post-traumatic growth.

Item Type: Article
Additional Information: Final publication is available from Mary Ann Liebert, Inc., publishers http://dx.doi.org/10.1089/jpm.2021.0290
Keywords: bereavement, child, infant, parent, pediatric intensive care unit, post-traumatic growth, Eunice Kennedy Shriver National Institute of Child Health and Human Development Collaborative Pediatric Critical Care Research Network (CPCCRN), bereavement, child, infant, parent, pediatric intensive care unit, post-traumatic growth, 1103 Clinical Sciences, 1110 Nursing, 1117 Public Health and Health Services, Gerontology
SGUL Research Institute / Research Centre: Academic Structure > Population Health Research Institute (INPH)
Journal or Publication Title: J Palliat Med
ISSN: 1557-7740
Language: eng
Dates:
DateEvent
3 February 2022Published
5 October 2021Published Online
20 July 2021Accepted
Publisher License: Publisher's own licence
Projects:
Project IDFunderFunder ID
UG1HD083170National Institute of Child Health and Human Developmenthttp://dx.doi.org/10.13039/100000071
UG1HD049981National Institute of Child Health and Human Developmenthttp://dx.doi.org/10.13039/100000071
UG1HD63108National Institute of Child Health and Human Developmenthttp://dx.doi.org/10.13039/100000071
UG1HD083166National Institute of Child Health and Human Developmenthttp://dx.doi.org/10.13039/100000071
UG1HD083171National Institute of Child Health and Human Developmenthttp://dx.doi.org/10.13039/100000071
UG1HD049983National Institute of Child Health and Human Developmenthttp://dx.doi.org/10.13039/100000071
U01HD049934National Institute of Child Health and Human Developmenthttp://dx.doi.org/10.13039/100000071
UG1HD050096National Institute of Child Health and Human Developmenthttp://dx.doi.org/10.13039/100000071
PubMed ID: 34612728
Go to PubMed abstract
URI: https://openaccess.sgul.ac.uk/id/eprint/113775
Publisher's version: https://doi.org/10.1089/jpm.2021.0290

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