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A Service Evaluation of the Experiences of Patients With Functional Neurological Disorders Within the NHS.

O'Keeffe, S; Chowdhury, I; Sinanaj, A; Ewang, I; Blain, C; Teodoro, T; Edwards, M; Yogarajah, M (2021) A Service Evaluation of the Experiences of Patients With Functional Neurological Disorders Within the NHS. Front Neurol, 12. p. 656466. ISSN 1664-2295 https://doi.org/10.3389/fneur.2021.656466
SGUL Authors: Edwards, Mark John James

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Abstract

Previous research into Functional Neurological Disorder (FND) has shown that there are significant barriers in providing patient-centred care. However, there has been no specific research into whether patient experiences of care for FND meet the current standards of care. This study aimed to investigate the types of problems experienced by FND patients, and whether these differed to patients with multiple sclerosis (MS). FND (n = 40) and MS patients (n = 37) were recruited from NHS tertiary neurology clinics and completed questionnaires on their experiences of health care services. Significant differences in experiences of care between the two patient groups were found, with FND patients reporting significantly more problems in their diagnosis and treatment (p = 0.003), patient-centred care (p < 0.001), relationships with healthcare professionals (p < 0.001), and in accessing community care (p = 0.001). Limitations include a small sample size, specificity to a single centre, and cross-sectional design. The results suggest that current care for FND patients is not meeting expected standards for long-term neurological conditions, highlighting the need for structured care pathways and patient-centred care.

Item Type: Article
Additional Information: Copyright © 2021 O'Keeffe, Chowdhury, Sinanaj, Ewang, Blain, Teodoro, Edwards and Yogarajah. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
Keywords: NHS, conversion disorder, functional neurological disorder, long-term neurological conditions, patient experience, patient-reported experience measure, service evaluation, standards of care, functional neurological disorder, conversion disorder, patient-reported experience measure, long-term neurological conditions, patient experience, service evaluation, standards of care, NHS, 1109 Neurosciences, 1103 Clinical Sciences, 1701 Psychology
SGUL Research Institute / Research Centre: Academic Structure > Molecular and Clinical Sciences Research Institute (MCS)
Journal or Publication Title: Front Neurol
ISSN: 1664-2295
Language: eng
Dates:
DateEvent
31 May 2021Published
7 May 2021Accepted
Publisher License: Creative Commons: Attribution 4.0
PubMed ID: 34135848
Web of Science ID: WOS:000661093600001
Go to PubMed abstract
URI: https://openaccess.sgul.ac.uk/id/eprint/113436
Publisher's version: https://doi.org/10.3389/fneur.2021.656466

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