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Living with incontinence: The experience of people with dementia.

Cole, L; Drennan, VM (2019) Living with incontinence: The experience of people with dementia. Dementia (London), 18 (5). pp. 1826-1839. ISSN 1741-2684 https://doi.org/10.1177/1471301217731171
SGUL Authors: Drennan, Vari MacDougal

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Abstract

Dementia is a distressing condition in which individuals progressively require the support of others. Many people experience problems with incontinence and continence management. The presence of incontinence is influential in decisions for people with dementia to move into a care home. This study, in the interpretative tradition, investigates for the first time the person with dementia's perspective on these problems and their strategies for managing them. We conducted semi-structured conversational interviews with seven people with mild-to-moderate dementia and analysed the transcripts thematically. Our participants described both a variety of problems with incontinence and continence management, and their embarrassment and humiliation. Strategies included managing their presentation of self to others to keep such problems hidden, although it was evident that for some their cognitive problems led to strategies that were potentially problematic for others. In addition, some described the ways in which they acted to protect others, such as spouses, from the stigmatising effect of the incontinence.

Item Type: Article
Additional Information: Cole, L; Drennan, VM, Living with incontinence: The experience of people with dementia, Dementia (Volume: 18 issue: 5) pp. 1826-1839. Copyright © 2017 (The Author(s)). DOI: 10.1177/1471301217731171
Keywords: dementia, incontinence, older people, qualitative, stigma, 1103 Clinical Sciences, 1110 Nursing, 1702 Cognitive Science, Geriatrics
Journal or Publication Title: Dementia (London)
ISSN: 1741-2684
Language: eng
Dates:
DateEvent
1 July 2019Published
19 September 2017Published Online
Publisher License: Publisher's own licence
Projects:
Project IDFunderFunder ID
RP-PG-0606-1005National Institute for Health Researchhttp://dx.doi.org/10.13039/501100000272
PubMed ID: 28925299
Go to PubMed abstract
URI: https://openaccess.sgul.ac.uk/id/eprint/110381
Publisher's version: https://doi.org/10.1177/1471301217731171

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