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Families’ experiences of life in the year after a child’s critical illness: Navigating the road to a ‘new normal’

Atkins, E; John, M; Colville, G (2020) Families’ experiences of life in the year after a child’s critical illness: Navigating the road to a ‘new normal’. JOURNAL OF PEDIATRIC INTENSIVE CARE. ISSN 2146-4618 https://doi.org/10.1055/s-0040-1705132
SGUL Authors: Colville, Gillian

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Abstract

Semistructured interviews were conducted with patients and family members (n = 18) postdischarge to examine how they managed their recovery in the year following a child's intensive care unit admission. Data were analyzed using the grounded theory. Participants described an ongoing need to develop and adapt their narratives about admission and recovery. Other key themes were as follows: just getting through, recognizing they had changed, striving for normality, and finding positive aspects related to their experiences. It took longer than they expected for families to build a coherent narrative of events postdischarge and to adjust to the “new normal.” Implications for health professionals are discussed.

Item Type: Article
Additional Information: Copyright © by Georg Thieme Verlag KG, Stuttgart | New York
SGUL Research Institute / Research Centre: Academic Structure > Population Health Research Institute (INPH)
Journal or Publication Title: JOURNAL OF PEDIATRIC INTENSIVE CARE
ISSN: 2146-4618
Dates:
DateEvent
9 March 2020Published Online
29 January 2020Accepted
Publisher License: Publisher's own licence
URI: http://openaccess.sgul.ac.uk/id/eprint/111722
Publisher's version: https://doi.org/10.1055/s-0040-1705132

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