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Development of an international standard set of outcome measures for patients with atrial fibrillation: a report of the International Consortium for Health Outcomes Measurement (ICHOM) atrial fibrillation working group.

Seligman, WH; Das-Gupta, Z; Jobi-Odeneye, AO; Arbelo, E; Banerjee, A; Bollmann, A; Caffrey-Armstrong, B; Cehic, DA; Corbalan, R; Collins, M; et al. Seligman, WH; Das-Gupta, Z; Jobi-Odeneye, AO; Arbelo, E; Banerjee, A; Bollmann, A; Caffrey-Armstrong, B; Cehic, DA; Corbalan, R; Collins, M; Dandamudi, G; Dorairaj, P; Fay, M; Van Gelder, IC; Goto, S; Granger, CB; Gyorgy, B; Healey, JS; Hendriks, JM; Hills, MT; Hobbs, FDR; Huisman, MV; Koplan, KE; Lane, DA; Lewis, WR; Lobban, T; Steinberg, BA; McLeod, CJ; Moseley, S; Timmis, A; Yutao, G; Camm, AJ (2020) Development of an international standard set of outcome measures for patients with atrial fibrillation: a report of the International Consortium for Health Outcomes Measurement (ICHOM) atrial fibrillation working group. Eur Heart J, 41 (10). pp. 1132-1140. ISSN 1522-9645 https://doi.org/10.1093/eurheartj/ehz871
SGUL Authors: Camm, Alan John

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Abstract

AIMS: As health systems around the world increasingly look to measure and improve the value of care that they provide to patients, being able to measure the outcomes that matter most to patients is vital. To support the shift towards value-based health care in atrial fibrillation (AF), the International Consortium for Health Outcomes Measurement (ICHOM) assembled an international Working Group (WG) of 30 volunteers, including health professionals and patient representatives to develop a standardized minimum set of outcomes for benchmarking care delivery in clinical settings. METHODS AND RESULTS: Using an online-modified Delphi process, outcomes important to patients and health professionals were selected and categorized into (i) long-term consequences of disease outcomes, (ii) complications of treatment outcomes, and (iii) patient-reported outcomes. The WG identified demographic and clinical variables for use as case-mix risk adjusters. These included baseline demographics, comorbidities, cognitive function, date of diagnosis, disease duration, medications prescribed and AF procedures, as well as smoking, body mass index (BMI), alcohol intake, and physical activity. Where appropriate, and for ease of implementation, standardization of outcomes and case-mix variables was achieved using ICD codes. The standard set underwent an open review process in which over 80% of patients surveyed agreed with the outcomes captured by the standard set. CONCLUSION: Implementation of these consensus recommendations could help institutions to monitor, compare and improve the quality and delivery of chronic AF care. Their consistent definition and collection, using ICD codes where applicable, could also broaden the implementation of more patient-centric clinical outcomes research in AF.

Item Type: Article
Additional Information: © The Author(s) 2020. Published by Oxford University Press on behalf of the European Society of Cardiology.This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/licenses/by-nc/4.0/),which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited. For commercial re-use, please contact journals.permissions@oup.com
Keywords: Atrial fibrillation, Outcomes, Patient-reported, Value-based health care, 1102 Cardiorespiratory Medicine and Haematology, Cardiovascular System & Hematology
SGUL Research Institute / Research Centre: Academic Structure > Molecular and Clinical Sciences Research Institute (MCS)
Journal or Publication Title: Eur Heart J
ISSN: 1522-9645
Language: eng
Dates:
DateEvent
7 March 2020Published
29 January 2020Published Online
2 December 2019Accepted
Publisher License: Creative Commons: Attribution-Noncommercial 4.0
PubMed ID: 31995195
Go to PubMed abstract
URI: http://openaccess.sgul.ac.uk/id/eprint/111620
Publisher's version: https://doi.org/10.1093/eurheartj/ehz871

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