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Epilepsy deaths: Learning from health service delivery and trying to reduce risk.

Morrish, P; Duncan, S; Cock, H (2020) Epilepsy deaths: Learning from health service delivery and trying to reduce risk. Epilepsy Behav, 103 (B). p. 106473. ISSN 1525-5069 https://doi.org/10.1016/j.yebeh.2019.106473
SGUL Authors: Cock, Hannah Rutherford

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Abstract

Two recent UK reports have highlighted data of concern in relation to potentially preventable epilepsy deaths. Public Health England, an executive agency of the Government Department of Health, using National Health Service data from 2001 to 2014 reported a rise in direct age-standardised mortality for epilepsy-associated deaths, in contrast to a reduction in all-cause deaths over the same period. Premature death was seen in people aged below 50 years, especially in men, and where epilepsy was a contributory cause rather than an association. The Scottish Epilepsy Deaths Study, analysing deaths between 2009 and 2016, similarly found death in those with epilepsy was significantly higher than the matched population below the age of 54, especially between the ages of 16 and 24 (6 times higher). Sudden unexpected death in epilepsy accounted for 38% of epilepsy-related deaths under the age of 45. Both studies found a strong relationship between risk of death and deprivation; we discuss the implications of these and other data for planning service delivery and improving epilepsy care. This paper is for the Special Issue: Prevent 21: SUDEP Summit - Time to Listen.

Item Type: Article
Additional Information: © 2019. This manuscript version is made available under the CC-BY-NC-ND 4.0 license http://creativecommons.org/licenses/by-nc-nd/4.0/
Keywords: Deprivation, Epilepsy, Epilepsy nurses, SUDEP, Service provision, Deprivation, Epilepsy, Epilepsy nurses, SUDEP, Service provision, 1103 Clinical Sciences, Neurology & Neurosurgery
SGUL Research Institute / Research Centre: Academic Structure > Institute of Medical & Biomedical Education (IMBE)
Academic Structure > Institute of Medical & Biomedical Education (IMBE) > Centre for Clinical Education (INMECE )
Journal or Publication Title: Epilepsy Behav
ISSN: 1525-5069
Language: eng
Dates:
DateEvent
February 2020Published
23 October 2019Published Online
26 July 2019Accepted
Publisher License: Creative Commons: Attribution-Noncommercial-No Derivative Works 4.0
Projects:
Project IDFunderFunder ID
R44007Epilepsy Research UKhttp://dx.doi.org/10.13039/501100000295
PubMed ID: 31668578
Go to PubMed abstract
URI: http://openaccess.sgul.ac.uk/id/eprint/111386
Publisher's version: https://doi.org/10.1016/j.yebeh.2019.106473

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