SORA

Advancing, promoting and sharing knowledge of health through excellence in teaching, clinical practice and research into the prevention and treatment of illness

What factors influence successful recruitment of siblings of individuals with first episode psychosis to e-health interventions? A qualitative study.

Sin, J; Henderson, C; Spain, D; Gamble, C; Norman, I (2017) What factors influence successful recruitment of siblings of individuals with first episode psychosis to e-health interventions? A qualitative study. Health Expectations, 20 (4). pp. 696-704. ISSN 1369-7625 https://doi.org/10.1111/hex.12508
SGUL Authors: Sin, Pui Han Jacqueline

[img]
Preview
PDF Published Version
Available under License Creative Commons Attribution.

Download (304kB) | Preview

Abstract

BACKGROUND: Recruitment to clinical research studies can prove complex. This is particularly true of mental health research, given factors such as confidentiality, capacity and consent, or when attempting to recruit family members as opposed to service users themselves. AIM: This study investigated the challenges experienced and strategies employed in the recruitment of siblings of people with first episode psychosis using Early Intervention in Psychosis Services (EIPS) in England. METHODS: As part of a randomized controlled trial (RCT) of an e-health intervention for siblings, we conducted a process evaluation study whereby semistructured interview was undertaken with clinical and research staff involved in recruitment of siblings. Data were analysed thematically. RESULTS: Twelve participants from six EIPS were interviewed. Data analysis revealed seven key themes: (i) limited comprehensive family data available; (ii) data governance and consent issues; (iii) organizational factors; (iv) convoluted recruitment methods; (v) concerns about service users' opinions; (vi) fluidity in siblings' needs and expectations; and (vii) strategies to enhance recruitment. CONCLUSIONS: Recruitment challenges identified in this study concerned administrative, organizational, process and attitudinal issues. These are similar to other studies recruiting mental health service users as well as family members. Failure to recruit to target implies that studies are underpowered to detect potential statistically or clinically meaningful changes. Future studies should establish how best to enhance family inclusiveness in clinical practice and research.

Item Type: Article
Additional Information: © 2016 The Authors. Health Expectations published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
Keywords: brothers and sisters/siblings, e-health interventions, families/family carers, psychosis, trial recruitment, Public Health, 1117 Public Health And Health Services, 1110 Nursing, 1701 Psychology
SGUL Research Institute / Research Centre: Academic Structure > Population Health Research Institute (INPH)
Journal or Publication Title: Health Expectations
ISSN: 1369-7625
Language: ENG
Dates:
DateEvent
17 July 2017Published
6 October 2016Published Online
13 September 2016Accepted
Publisher License: Creative Commons: Attribution 4.0
Projects:
Project IDFunderFunder ID
NIHR-DRF-04-129National Institute for Health Researchhttp://dx.doi.org/10.13039/501100000272
NIHR-PDF-08-035National Institute for Health Researchhttp://dx.doi.org/10.13039/501100000272
PubMed ID: 27709734
Go to PubMed abstract
URI: https://openaccess.sgul.ac.uk/id/eprint/108297
Publisher's version: https://doi.org/10.1111/hex.12508

Actions (login required)

Edit Item Edit Item