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A current landscape of provincial perinatal data collection in Canada.

Massey, KA; Magee, LA; Dale, S; Claydon, J; Morris, TJ; von Dadelszen, P; Liston, RM; Ansermino, JM; Canadian Perinatal Network Collaborative Group and the British C, CPNCG (2009) A current landscape of provincial perinatal data collection in Canada. Journal of Obstetrics and Gynaecology Canada, 31 (3). pp. 236-246. ISSN 1701-2163 https://doi.org/10.1016/S1701-2163(16)34122-6
SGUL Authors: von Dadelszen, Peter

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Abstract

BACKGROUND: The Canadian Perinatal Network (CPN) was launched in 2005 as a national perinatal database project designed to identify best practices in maternity care. The inaugural project of CPN is focused on interventions that optimize maternal and perinatal outcomes in women with threatened preterm birth at 22+0 to 28+6 weeks' gestation. OBJECTIVE: To examine existing data collection by perinatal health programs (PHPs) to inform decisions about shared data collection and CPN database construction. METHODS: We reviewed the database manuals and websites of all Canadian PHPs and compiled a list of data fields and their definitions. We compared these fields and definitions with those of CPN and the Canadian Minimal Dataset, proposed as a common dataset by the Canadian Perinatal Programs Coalition of Canadian PHPs. RESULTS: PHPs collect information on 2/3 of deliveries in Canada. PHPs consistently collect information on maternal demographics (including both maternal and neonatal personal identifiers), past obstetrical history, maternal lifestyle, aspects of labour and delivery, and basic neonatal outcomes. However, most PHPs collect insufficient data to enable identification of obstetric (and neonatal) practices associated with improved maternal and perinatal outcomes. In addition, there is between-PHP variability in defining many data fields. CONCLUSION: Construction of a separate CPN database was needed although harmonization of data field definitions with those of the proposed Canadian Minimal Dataset was done to plan for future shared data collection. This convergence should be the goal of researchers and clinicians alike as we construct a common language for electronic health records.

Item Type: Article
Additional Information: © 2009 Society of Obstetricians and Gynaecologists of Canada. Published by Elsevier Inc. All rights reserved. Made available with permission from the publisher. Contact publisher for any further re-use.
Keywords: Canada, Data Collection, Databases, Factual, Female, Humans, Perinatal Care, Pregnancy, Canadian Perinatal Network Collaborative Group and the British Columbia Perinatal Health Program, Humans, Perinatal Care, Data Collection, Pregnancy, Databases, Factual, Canada, Female, 1114 Paediatrics And Reproductive Medicine
SGUL Research Institute / Research Centre: Academic Structure > Molecular and Clinical Sciences Research Institute (MCS)
Journal or Publication Title: Journal of Obstetrics and Gynaecology Canada
ISSN: 1701-2163
Language: eng
Dates:
DateEvent
1 March 2009Published
Publisher License: Publisher's own licence
PubMed ID: 19416570
Go to PubMed abstract
URI: http://openaccess.sgul.ac.uk/id/eprint/107536
Publisher's version: https://doi.org/10.1016/S1701-2163(16)34122-6

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