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Study protocol for the development of a European measure of best practice for people with long term mental health problems in institutional care (DEMoBinc).

Killaspy, H; King, M; Wright, C; White, S; McCrone, P; Kallert, T; Cervilla, J; Raboch, J; Onchev, G; Mezzina, R; et al. Killaspy, H; King, M; Wright, C; White, S; McCrone, P; Kallert, T; Cervilla, J; Raboch, J; Onchev, G; Mezzina, R; Wiersma, D; Kiejna, A; Ploumpidis, D; Caldas de Almeida, JM (2009) Study protocol for the development of a European measure of best practice for people with long term mental health problems in institutional care (DEMoBinc). BMC Psychiatry, 9 (36). ISSN 1471-244X https://doi.org/10.1186/1471-244X-9-36
SGUL Authors: White, Sarah Jane Wright, Christine

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Abstract

BACKGROUND: This study aims to build a measure for assessing and reviewing the living conditions, care and human rights of people with longer term mental health problems in psychiatric and social care institutions. Protection of their human rights is imperative since impaired mental capacity secondary to mental illness can make them vulnerable to abuse and exploitation from others. They also constitute a major resource pressure for mental health services, social services, informal carers and society as a whole. METHODS/DESIGN: This study uses an iterative methodology to develop a toolkit to assess internationally agreed domains of care that are considered most important for recovery. These domains are identified by collating results from: i) a systematic review of the literature on institutional care for this service user group; ii) a review of the relevant care standards in each participating country; iii) Delphi exercises in partner countries with mental health professionals, service users, carers and advocates. Common domains and cross-cutting themes are agreed by the principal researchers and an international expert panel. Items are developed to assess these domains and incorporated into the toolkit which is designed to be administered through a face to face interview with the institution's manager. The toolkit is refined in response to inter-rater reliability testing, feedback from interviewers and interviewees regarding its utility, and feedback from key stakeholders in each country about its ability to deliver information that can be used within each country's established systems for quality assessment and review. Cross-validation of the toolkit ratings against service users' quality of life, autonomy and markers of recovery tests whether it can deliver a proxy-measure of the service users' experiences of care and the institution's promotion of their human rights and recovery. The ability of the toolkit to assess the "value for money" delivered by institutions is investigated by comparing toolkit ratings and service costs. DISCUSSION: The study will deliver the first international tool for the assessment of the quality of institutional care for people with longer term mental health problems that is accurate, reliable, informative, useful and easy to use.

Item Type: Article
Additional Information: © 2009 Killaspy et al; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
Keywords: Community Mental Health Services, Europe, Great Britain, Health Care Surveys, Human Rights, Humans, Institutionalization, Long-Term Care, Mental Disorders, Meta-Analysis as Topic, Patient Care Planning, Patient Rights, Program Development, Quality Assurance, Health Care, Quality of Life, Questionnaires, Social Work, Psychiatric, Therapy, Computer-Assisted, Science & Technology, Life Sciences & Biomedicine, Psychiatry, PSYCHIATRY, SCI, 1103 Clinical Sciences
SGUL Research Institute / Research Centre: Academic Structure > Population Health Research Institute (INPH)
Journal or Publication Title: BMC Psychiatry
ISSN: 1471-244X
Language: eng
Dates:
DateEvent
13 June 2009Published
PubMed ID: 19523240
Web of Science ID: WOS:000268083800001
Go to PubMed abstract
URI: http://openaccess.sgul.ac.uk/id/eprint/107321
Publisher's version: https://doi.org/10.1186/1471-244X-9-36

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